JUST IN: FDA Approves New Drug For Children That Leaves EVERYONE Furious After Seeing The Price Tag

Dean James III% AMERICA’S FREEDOM FIGHTERS

Welcome to the latest drug price scandal. The FDA just approved one of the most expensive drugs ever with a whopping $700,000 price tag… Big pharma and big government at work folks. 

BioMarin Pharmaceuticals manufactured the drug, which is called Brineura for children battling CLN2.

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Fortune reports that it’s the first-ever drug approved for a form of Batten disease, a rare genetic disorder that ravages the nervous system and can cause symptoms ranging from seizures to trouble coordinating muscles to vision loss. It can affect both adults and children; Brineura is approved for kids who are at least three years old.

BioMarin’s regulatory win is good news for patients considering the dearth of available Batten disease treatments. But who can afford that kind of money? It’s unbelievable.

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BioMarin estimates that between 1,200 to 1,600 children across the globe have the condition — 85 percent of whom live outside the United States, AOL reports.

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Though patients won’t actually have to pay that much money for the drug, it adds to the controversy surrounding high prices for rare disease drugs.

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Believe it or not, Brineura isn’t even the most expensive drug out there. That distinction goes to Horizon Pharma’s Ravicti, which rings in at $793,632 per year. (Another contender is Biogen’s recently approved spinal muscular atrophy therapy Spinraza, which costs $750,000 in its first year but then drops to $325,000 per year thereafter.)

Drug makers—especially those focusing on rare diseases—justify high list prices by arguing that it’s extremely difficult to discover groundbreaking treatments that affect just a sliver of the population. This makes the clinical trial process more cumbersome and the limited patient pool means there isn’t a huge market to sell to. Just consider the example of UniQure, whose $1 million-plus gene therapy is now being shelved because it barely had any sales at all in five years.

Look, the bottom line is that none of these drugs should cost anywhere near this price.

I can see charging $100 or so but that price is totally out of control.

I’m all for companies making a nice profit but this is absolutely insane.

Why bother making drugs that can save lives if those who need it can’t even come close to being able to afford it?

Simply unbelievable…

God Bless.

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Dean James III% AMERICA’S FREEDOM FIGHTERS

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